I choose number 2!!

(This has nothing to do with the previous post about the lack of fiber in my diet)

I had a much longer post that I was going to write today but I thought that I would give you a little update of what is going on my Celiac condition in hopes of helping people who may be in the same boat.

I was diagnosed with Celiac Disease almost three months ago now.  Right after my diagnosis, and start of a very strict gluten free diet, I stated to feel much better.  I had more energy, more stamina, more focus; in other words I was feeling great!!

I wish I could say that it lasted, but it hasn’t.  Due to some other medical issues I was having, I have been to the doctor a few times over the last month.  The doctor decided to run a Celiac Panel to see how I was doing with my diet.  Now, I know I am being as strict as anyone can be, and not even thinking about cheating, and really try to stay away from things that may cross contaminate me, but I suppose he wanted to check anyway.

Even with being very strict, my Celiac panel is not where it should be.  It could mean that I am getting gluten somewhere (I can’t even fathom a guess).  It could also me that I have a different kind of Celiac that I had not heard about until yesterday called Refractory Celiac Disease.  RCD is a type of Celiac Disease that requires other interventions besides just a strict gluten free diet.

What these interventions are, I am not sure and neither was my doctor (understandable as he is general internist).  So I am in the process of either getting a referral from the hospital in which my doctor practices, or getting an appointment at the Celiac Center at Beth Israel Deaconess Hospital in Boston.  In the meantime, I am healthy, all my nutrient levels are up, just not where they should be.  I am and will be OK.

That last line is the reason I wrote this post.  I did not write the post for people to say “Poor me”; I did not write the post because I am feeling sorry for myself.  I did write the post because I wanted people to know that it isn’t always going to be easy and sometimes it sucks and you will not always get the news that you want.

At that point you have two choices; 1. to wallow in self-pity or 2.  get on…and move on and find out what is going on with your body and take care of it as soon as possible.

For the record, I choose number 2!!

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