Living with Malnutrition

So again, sorry that it has been a crazy couple of weeks and the posts have been far and few between.  Both us yoda’s have been swamped at work and I haven’t been feeling all that well.  So to catch you up, the reason that they found out that I did in fact have Celiac Disease was that my vitamins and minerals tanked, landing me in the hospital for what they called a “heart incident.”  Some of my levels were the lowest that my Personal Care Physician had ever seen ( my Vitamin D was 4 should be at least 133 on the low end). So a couple of days in the hospital with some IV bags and Potassium drinks got be back to a decent place.

For a while after this I was feeling great, I had tons of energy, the aches and pains were less, my mind was clear.  I thought I was on the road to recovery.  I was following my diet to the T, asking the right questions and living the gluten free life.

Fast forward to today….

I am not feeling so great, I am still living the gluten free life, but now I have to be even stricter.  If it is not certified or made on a dedicated line in a dedicated factory then I shouldn’t eat it.  My numbers are still showing that I am getting hidden gluten and my vitamin and mineral levels are still not where they should be.  So now I am taking:

  • Multivitamin
  • Vitamin B1
  • Vitamin B2
  • Vitamin B6
  • Vitamin B12
  • Vitamin D
  • Zinc
  • Calcium

Along with my other daily meds; this is pretty much breakfast on some days.  I wish I could tell you  that I was feeling 100% better on all these supplements but I am not there yet.

We are still trying to search out the hidden gluten in things like my toothpaste, shampoo, and  in my wife care products like her lipstick (if it touches your mouth you could be getting gluten from it).  Somedays it can be a little disheartening, but as I have said before, I am not giving up and I will keep battling this until I find out what is wrong and get back to the place where I was when I got out of the hospital.

I am doing this with the help of the great people over at the Celiac Center at Beth Israel Deaconess so I am being treated by some of the best.  So we will keep plugging away.

Sorry for the Debby Downer post, but I think it is important for people with Celiac to know that it’s now always going to be easy.  There are going to be plenty of ups and downs and you just have to stick in there.  In the end I am sure it will be worth it.

Happy July 4th…go enjoy your family and friends; and like Jason I also wholeheartedly endorse the Udi’s Hamburg and Hot Dog Buns for your family BBQ.  They are so goood!!

I’m a bad yoda…

I have not abandoned the blog, this is a real heartfelt journey for me.  In my case, we are still trying to get me to heal and at the same time make sure that I have enough nutrition in my body to sustain my vital organs.  I am not complaining, I get that this is part of my journey and I am not letting it get the better of me.  I am just so crazy busy and have had quite a few appointments that it is hard to find the time to be creative.  Even though what we share is our lives, it still takes a bit of creativity to make our loyal followers want to stay our loyal followers.  So I promise, next week I am back in the saddle…  Bill

Food Should Taste Good – Yes, yes, it should – even when gluten free!

My brother turned me onto Food Should Taste Good (FSTG) chips recently and I am completely hooked.  I can’t seem to keep them stocked in the house.  My wife loves them too!  It’s hard to find healthy gluten free alternatives to fiber-rich crackers, and these hit the mark.  I suppose they could go on the ‘happen to be gluten free’ list, but I wanted to call them out seeing as I eat them almost every day.  They have pretty much become a cracker-substitute for me.  There’s nothing like a good slice of Cabot NY Sharp Cheddar on one of these chips.  Yum!

So … what makes them so good?!  I think it’s because they didn’t really focus on the non-gluten aspect of the food.  Instead, they focus on what makes healthy food taste good, like incredible flavors and seasonings.  People often ask me when I cook for them – what did you do to make this taste so good?  My answer is often ‘nothing’.  I let food speak for itself.  A little salt and pepper go a long way.  I think that the folks at FSTG work with this philosophy as well.  The food is good already, they are just focused on what makes it healthier and in some instances more sophisticated.

All of the FSTG chips are gluten free, cholesterol free, and are a good source of fiber (which is needed as evidenced by Bill’s recent experience).  Here are a list of my personal favorites:

  • Olive - these taste incredible.  With a little hummus or even guacamole, these chips are great.
  • Lime - Again … dip these in a little guacomole and you’re at your favorite mexican cantina – and you know it’s GF!
  • Cheddar - I know it seems odd to double up, but I do!  I eat these with a slice of cheddar on top and it’s all cheese-kwow goodness.  I would put these in the better-for-you-than-Doritos category. 
  • Toasted Sesame - these are the ones that are most like a cracker to me.  Serve these with a bit of cheese, a shmear of cream cheese or with other crudete.
  • Multigrain - hey, you asked for healthy and GF.  Here it is.  They taste great with anything, really!

I should say that all of the other flavors are great too, I’m just listing my personal favorites.  So … if you stumble on these simply packaged black and white bags of chips – grab a couple.  You won’t regret it.  Crack open a bottle of wine (yes, wine is GF!), get a nice smoked gouda for the chips, and relax – you’ve had a hard day at work!

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