I’m a bad yoda…

I have not abandoned the blog, this is a real heartfelt journey for me.  In my case, we are still trying to get me to heal and at the same time make sure that I have enough nutrition in my body to sustain my vital organs.  I am not complaining, I get that this is part of my journey and I am not letting it get the better of me.  I am just so crazy busy and have had quite a few appointments that it is hard to find the time to be creative.  Even though what we share is our lives, it still takes a bit of creativity to make our loyal followers want to stay our loyal followers.  So I promise, next week I am back in the saddle…  Bill

Life Happens…

So I had originally planned  a trip report from my recent trip to Washington DC; but life has gotten a little in the way.

As we said we would always be honest, so I will give you some information of what it going on.  I have not been feeling all that well lately so I went to the Dr. and subsequently ended up at the Celiac Center at Beth Israel Hospital in Boston.  Well the truth of the matter is my gluten numbers are way too high and malabsorption is still occurring.  So I am having a biopsy on Friday to find out what is going on.  So I am very sorry that I did not have time to finish the post.  Jason will post on Thursday and I will have my trip report for you on next Tuesday…As I said “Life Happens”

To make up for it I thought I would share another picture from my friend Mark. This is the hat that President Lincoln was wearing the night that he was assassinated.  It was displayed in the Smithsonian Museum of American History.

Gluten Free Tool Kit

In my family every Saturday is “gluten free shopping day.”  This usually consists of a trip to several different places to stock up on food for the week.  This week we had a special appearance by my 13 year old son Evan who is also now starting on a gluten free diet as we wait for results of his Celiac panel blood test (I will write more about this in a future post.)  We usually hit a local health food store called Good Health, which for a small store has a very large selection of gluten free products.  Sometimes it includes a trip to Whole Foods, but not always, as their selection of gluten free products is not as extensive as Good Health.  The one place that we always go is Allcaneat Bakery, this place has the greatest gluten free prepared meals and baked goods.

What does this have to do with a GF Tool Kit?  Let me tell you.  It never fails that when we are on our shopping trip we always seem to run into someone who is just starting on their own gluten free diet journey.  Getting a gluten insensitivity or Celiac diagnosis can bring on a lot of stress since it is such a major change in your life, and most newbies are just looking for someone to throw them a lifer preserver;  this life preserver comes in the form of information.  I met a young women named Megan on Saturday who had just gotten her diagnosis and was looking for someone to give her some assistance.  So what is a Yoda to do?  This Yoda provided a brain dump of all the information in “his” GF Tool Kit.

Here’s what is inside!!

1. It is great if you have someone who can tell you what products tastes good and what doesn’t.  We have provided that in an earlier post that Jason wrote.

2. Knowledge is power, and the more you understand about your diagnosis and diet the better.  Here are a couple of good books that I think provide a lot of useful information:

3. I also found a few good iPod/iPad apps for eating out:

  • The Gluten Free Registry – finds all the restaurants, bakeries and grocery stores near your location
  • Gluten Freed – has a decent list of places to eat by state
  • Is that Gluten Free - a little expensive but gives you a list of most products in grocery stores and whether they are gluten free

4. The Gluten Free Guide- my nutritionist told me about this book and I could not live without it.  It is called the Gluten Free Shopping Guide.  It has an extensive list of things that are gluten free and includes most local super market chains.  They also update it if products are added or taken off the list.  It can be found here…

5. The Web – there are way too many great sites out there about gluten free living and Celiac disease to list so I will just give the most important one below:

6. I have found that the magazine Living Without has some great articles along with gluten free recipes and resources.

7. Most grocery chains that cater to the gluten free crowd have product lists of all their gluten free products.  Two chains that I know that have them are:

  • Whole Foods
  • Trader Joes (read throughly, some of their things are made in the same plants, cross contamination may happen)

8. A list of Gluten Free Medications, most of us take something even if it is ibuprofen, it is always better to know that you are not going to react to it.

9. A couple of standby restaurants that you know you can go to and get a safe gluten free meal.  Use the The Gluten Free Registry to find local places.  Even though restaurants may not advertise GF, they may have GF – call and ask – you never know.  Mine are:

10. A support system:  this is probably the most important.  Having good friends and family who will help you through this transition make it so much easier to get through.

This is by far not a complete list and there are so many more things that you can have in your tool kit but I thought I would tell you what has helped me.

Hopefully this will help a few more “Megans” come to grips with their new lifestyles…

Shhh!, please don’t tell anyone that I am reading the Elisabeth Hasselbeck book!!

So you’re not sure who Elisabeth Hasselbeck is…well I will tell you. She was on Survivor, Australian Outback, went to Boston College where she met her husband, retired quarterback Tim Hasselbeck. But she is best known for her hosting duties on the daily talk show the View, where she has had numerous spats with many guests. I am not going to tell you them all here, but go ahead and YouTube them and you will find them all.

So when I was diagnosed I wanted a good book, well there are many, many, many books pertaining to Celiac Disease, Gluten Free cooking and Gluten Free Living. So you ask how did I end up with the Elisabeth Hasselbeck book, I blame my mother. She mentioned it to me and being a little bit of a momma’s boy (which guy isn’t) I told her I would look at it. Well when I did I found that it was pretty good and answered a bunch of questions that I had.

The G-Free Diet, A Gluten Free Survival Guide is written by Elisabeth Hasselbeck and Dr. Peter Green is a great book for someone who has no idea what gluten even is. Through her own story she talks about how she found out about her diagnosis and how she was not listened to at first until she found someone who dug deep enough to find the correct diagnosis (which I can sympathize with because the same thing happened to me).

I like the way that the authors explain what the allergy is and let people know that it is not a death sentence, even with the fact that you can’t eat bread, and that there are many great things to make and eat. The book calls itself a survival guide and it is just that - with information about, traveling, going to parties, living with a family that is not gluten free among other topics. The one part of the book that was a little lost on me, was a whole chapter on makeup (not sure this Yoda needs makeup, could use some hair but a good foundation…not so much). The book also contains recipes for some easy to make dishes, I have not made anything yet, I am still negotiating a second Gluten Free shelf in the kitchen cabinets.

So if you are newly diagnosed or just want to know a little bit more about Celiac Disease of living a Gluten Free the G-Free Diet is a pretty great book. So you know what, tell everyone that I am reading the Elisabeth Hasselbeck book and in fact go buy one for yourself.

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